European Medicines Agency engages with patients and healthcare professionals

The European Medicines Agency is committed to working with its stakeholders and in this video you can hear patient and healthcare professional representatives talk about how important it is to ensure your voice is added to the regulatory dialogue.

Source: https://youtu.be/Vhko3CXayFE

Restless Legs Syndrome (RLS) is a major burden on healthcare budgets in Europe

 
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A new report from the European Brain Council reveals poor diagnosis and treatment of Restless Legs Syndrome which makes it one of the most costly neurological disorders in Europe.

Restless Legs Syndrome (RLS) is a serious neurological disorder which has a high prevalence but is very often not recognized or even diagnosed as a disease, leading to delayed diagnosis and/or wrong treatment. This, in turn, brings unnecessary suffering to patients, a significant cost to healthcare budgets in Europe and costs to wider society. Frequently, RLS is not diagnosed due to lack of knowledge among healthcare professionals, and patients are left with no option but to suffer. Equally concerning is the frequency of misdiagnosis, where patients are prescribed incorrect and inappropriate therapies.

The Value of Treatment for Brain Disorders in Europe study, conducted by the European Brain Council (EBC), the European Academy of Neurology (EAN), the European RLS Patients Alliance (EARLS) and the European RLS Study Group (EURLSSG), in consultation with a team of researchers and experts from the London School of Economics, discovered that the treatment gap for RLS is very high. The total cost of poor diagnosis and treatment of RLS in the countries analysed (Germany, Italy and France) is significantly higher than the combined cost of Parkinson’s disease, Multiple Sclerosis and Epilepsy in these countries, partially due to the high prevalence of RLS.

The report highlights the importance of early detection and intervention, and the urgent need for proper education of healthcare professionals about RLS. The report also highlights the need for research into the cause(s) of RLS and for new treatment pathways to be identified to reduce patient suffering. 

The European Union spends just over three euro per year, per patient, on brain research, and access to treatment in many member states is getting worse, not better. According to an analysis carried on in 2010, neurological and mental disorders affect 165 million Europeans, with an overall cost of about €800 billion per ar. The Value of Treatment for Brain disorders in Europe study covered a range of mental and neurological disorders among which Schizophrenia, Alzheimer’s disease, Headache, Multiple Sclerosis, Normal Pressure Hydrocephalus, Stroke, Parkinson’s disease, Epilepsy and Restless Legs Syndrome, and highlighted the full cost of unmet healthcare needs, recommending new investment in research, earlier detections and interventions and better treatment for neurological disorders.

Visit the European Brain Council website for more information

CREDITS: EARLSEURLSSG & EAN

What Is Augmentation?

Restless legs syndrome (RLS) augmentation is a formidable foe. It describes a not-uncommon phenomenon in which—after weeks, months, or years of a patient’s RLS (also known by the newer name of Willis-Ekbom disease) being well controlled by a dopamine drug—the symptoms become more intense, take less time to occur when at rest, manifest earlier in the day, return more quickly after taking therapeutic medication, and may spread to other parts of the body.

This article, written by Dr. Mark Buchfuhrer, is one of the best we have read!

http://www.sleepreviewmag.com/2015/02/allaying-augmentation/

'It annoys me because sometimes it's embarrassing': How restless leg syndrome is affecting the lives of many

"When I'm trying to use my laptop for work it keeps making miss-spell things, so when I'm on the train if there is space I put it on the seat next to me.

"I get it more at work when my brain is working the most, it annoys me because sometimes it's embarrassing."

Amanda Hume, from Braintree, watched the programme which aired on Tuesday, April 4.

'Frustrating' restless leg syndrome investigated in new series

RESTLESS leg syndrome is affecting more people than we think.

Halstead residents who suffer from the syndrome, also known at Willis-Ekbom disease, have spoken out about the irresistible urge to move their legs.

RLS In The Sun newspaper, further to Channel 5 programme.

What is restless leg syndrome, what are the causes and is there a treatment? All you need to know.

Around one in 10 people experience restless leg syndrome at some point during their life.

are you visiting our website for the First time?

Did you see the RLS programme on Channel 5? Perhaps you just found us and you're looking for more information about RLS. 

If so and you are visiting our website for the first time, here are some things which might help...

What is RLS? 

Could you have RLS?

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