What is the purpose of the study?
The University of St Mark and St John in Plymouth is running a project which will gather information to try to identify any relationship between Restless Legs Syndrome/Willis-Ekbom Disease (RLS/WED) and the risk of falls and fracture incidence. They have asked RLS-UK to invite you to participate in their online survey.
The current study aims to identify the correlation between the three factors and enabling interventions to prevent someone who is living with Restless Legs Syndrome from having an associated fall and reduce the possibility of them having a future 'fragility fracture', as a result of falling from a standing height. It is being led by Sam Cross and supervised by Dr Giorgos Sakkas, Dr Christina Karatzaferi, and Professor Gary Schum.
Do I have to take part?
No. Your participation in this online survey is voluntary and anonymous. In order to participate, you need to read and click the consent button. By clicking the consent button, you consent your intention to participate. You can withdraw at any time during the completion of the survey but after you press the submit button it will not be possible to withdraw the submitted data (due to the anonymisation process).
What will happen to me if I take part?
If you do decide to participate you will have to answer 36 questions related to demographic, RLS characteristics, Falls risk and fracture history. It will take you approximately 15-20 minutes to read and consent as well as to complete the online survey, (the length of time is dependent on your answers).
The purpose of this research study is to collect anonymous information from people living in the general community, to get a greater understanding of the incidence of Restless Legs Syndrome, any associated incidence of Falls and Fracture risk.
This information will assist in identifying any correlation between the three factors and enabling interventions to prevent someone who is living with Restless Legs Syndrome from having an associated fall and reduce the possibility of them having a future 'fragility fracture', as a result of falling from a standing height.
The data acquired will be totally anonymous and there is no means of tracing participant IP addresses or other details that might lead to a participant’s identification.
The data will be kept for three years and will be stored in an encrypted and password protected university network folder on Dr Gary Schum’s drive. Data will be appropriately destroyed after the end of the 3-year period. Again, the data collected will be anonymous and accessible only by the main investigators within Marjon.
To take part in the study, please visit this link: https://forms.gle/huohEo2oftZgnUrs9