Visit the Health Unlocked Forum for people with RLS for support and advice

Julian is a semi-retired GP and a founding director of a GP Federation.

 

He has suffered from intermittent RLS for 30 years.

 

He brings personal experience of RLS together with medical knowledge. He also has experience of guideline writing for NICE, NHS administration and medical politics. He has worked in the media for over 20 years, appearing on radio and TV

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Debbie retired from her career mainly in the NHS and more recently working for a local hospice and  work with the charity to help and support people with RLS and PLMD. As membership secretary Debbie enjoys communicating with people who experience RLS as well as their families.

Debbie has had RLS for about 30 years and is keen to help others with RLS.  

 

She has made a short video about RLS to help raise awareness.  Debbie has also completed a 500-mile hike to raise both awareness of and funds for RLS-UK.  ​

Jonathan is a retired IT professional

 

He is active hill walker and cyclist whose Restless Legs started to become problematic soon after retirement.

 

Jonathan found the Health Unlocked Forum and RLS-UK website very useful and felt that being a Trustee was an opportunity to give back and support the organisation and its work.

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Academic and political scientist.

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Personal interest in RLS as long term sufferer, including experience with Dopamine Agonists, Tramadol/oxycodone, augmentation and iron infusion. 

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Emma has been working with RLS since 2022 as a volunteer, pro-bono lobbying to help raise awareness of the disease among Parliamentarians, in particular working with MPs and Peers to require government to collect better data, to update NICE guidelines including treatment plans and to improve GP training.

Energy Consultant Company Owner/Director and Trustee for other charities

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Long term RLS sufferer (>40 years), having personal experience of Temazepam, Gabapentin, Ropinirole, Rotigotine Patch (then augmentation) and currently Clonazepam

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With 30+ years working for an International Energy Company in roles including Global Audit & Governance Manger, Barrie has a passion for risk & corporate governance, and supporting companies and Charities to improve this area.

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Digital Health Advisor,  Non-Executive Director, and Patient Advocate

 

Richard has had intermittent RLS following head injury three decades ago.

After a dual finance/defence career, he sustained a life-changing Traumatic Brain Injury with multiple long-term sequelae, including RLS.

 

He now holds a range of decision-making and advisory roles, notably at 

NICE, ERA-NET NEURON, NHSE, MHRA, NIHR, and UKHDRA.

Richard retired from a career in local government, working mainly in education and children’s services but also in adult services and community health services.  

 

He has suffered from increasingly severe RLS for more than 25 years.  He has had experience of treatment with codeine, pregabalin and iron.

 

Having recently become a trustee, Richard has been impressed with the work of the charity and the help it gives sufferers and is keen to support it in whatever way is most helpful.

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