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Join date: May 13, 2023
About
I'm a keen walker and cyclist in my 60's who realised that I had Restless Legs Syndrome in my mid 50s after my wife mentioned my increasingly disruptive night time twitching. Until then I'd thought that my tendency to wake up was driven by work stress (which didn't help!)
I'm lucky that I'm retired and I can manage without medication apart from iron supplements but the regular night awakening does take a toll on my sleep and energy. I'm currently investigating whether iron infusions would help.
Posts (15)
May 3, 2026 ∙ 1 min
Parliamentary Petition for Inquiry into Dopamine Agonists
Our readers and members may be interested in this parliamentary petition for an inquiry to be held into the use of Dopamine Agonists in Parkinson's Disease and Restless Legs Syndrome https://petition.parliament.uk/petitions/764510
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Mar 29, 2026 ∙ 1 min
BBC Investigations Lead to Drug Warning Review
Ongoing investigations by the BBC's Noel Titherage, supported by RLS-UK, have led to an official review of warnings about Impulse Control Disorder resulting from the use of Dopamine Agonists. This an important step in the fight to have the prescription of these life changing and damaging drugs relegated to a very limited number of exceptional circumstances https://www.bbc.co.uk/news/articles/ckg0xxwn041o
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Oct 2, 2025 ∙ 1 min
On the Roof of Africa for RLS
Congratulations to Tina on her successful ascent to the top of Kilamanjaro. Her efforts and your support have raised over £3k for RLS-UK....
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Jonathan Wickens
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